Laura here, again. Dan's still snowed under at work so I'm trying to pick up the slack.
We visited Estelle together yesterday and found her to be still quite agitated. She barely acknowledged us and did nothing but mover her right arm around and pick at whatever got in the way. She was not talking and looked to be uncomfortable and unhappy. The antibiotic was started yesterday so it's still too soon to tell if it's going to make a difference.
I visited on my own early this morning. She was much quieter - when I arrived she had her eyes open but when I spoke to her and told her who I was and that Dan was working she simply turned her head, closed her eyes and fell asleep. I tried waking her a few times but without success so I tidied up her mail and pictures and simply sat at her bedside for an hour or so. The nurse came in with the new mitten and put that on her and she did not wake up during the process. They were going to wash her up and get her in a chair but I asked that they did not get her out of bed today because yesterday had been so rough for her and she was finally looking somewhat peacable just lying in bed. Angelica agreed with me and they were going to allow her to remain in bed for the day.
Unfortunately, after having been home for less than 2 hours, Angelica called to inform us that her feeding tube has, once again, fallen completely out. Angelica was not sure when, exactly, this happened. It's been infected and it's been loose (as always) and she has been incessantly picking at it and, apparently, when Angelica went to give her a dose of her antibiotic it was totally out. The balloon was still full so, unless a nurse accidently pulled it out and is not saying so, she probably pulled it out sometimes before the mitten was put on.
The doctor has been notified and an order given for an IV to be started for hydration and medication and they will call the surgery department at the hospital tomorrow morning and make an appointment to have it reinserted.
Once again, we wish the news were better.
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