“Other things may change us, but we start and end with family” Anthony Brandt

Wednesday, April 27, 2011

Wednesday, April 27, 2011

Dan and I visited this afternoon but, once again, we could not wake Estelle. She looks well - all of the swelling and redness in her arms and eye is totally gone and her general color is good. The nurse's aide said that she had said, "Thank you," after being dressed this morning, so we know she is still waking and talking occasionally, we've just not been there at the right times apparently.

We also had a meeting with her social worker and the head nurse to discuss her progress and her care plan post hospitalization. No big changes - same meds as before, oxygen as needed, nebulizer treatments as needed, she gets turned every two hours, hand splints are on 4 hours, off 2 hours during the day time and off at night. They are going to try getting her up in a chair more often but because of the continued lethargy it's hard to do because she slumps badly and looks horribly uncomfortable after a very short period of time. We prefer to be there when she's up because we never know for sure when they put her back in bed if we do not ask them to do it before we leave.

Maintenance finally put 3 of the 4 pictures up on the walls. It looks very nice and at least somewhat more "homey," now.



Sunday, April 24, 2011

Weekend, April 23 & 24, 2011

Not much to report. Dan and I visited Estelle both Saturday morning and Sunday morning - but had no success in waking her either time.

We did speak to the head nurse on Saturday and she said that, physically, Mom is doing as well as can be expected. The cellulitis has cleared up, her eye looks much better and her vitals are stable. She is back on oxygen virtually all of the time again and that's a bit worrisome to us but she does well with a minimum of O2 and she's been dependent on it before and then managed to come off of it without difficulty. Her feeding tube site is still leaking slightly but it's been doing that since it was first inserted back in July so it's unfortunate but it doesn't seen to be anything that that staff or the doctors at either place were too concerned about.

More worrisome is the fact that she is not responding most of the time. Again, we are hoping that it is just a matter of being worn out from the multiple infections and the resultant treatments and that proper rest and time will get her back to where she was two weeks ago.

She looks better each day....more color in her face and resting much more peacefully than when she was hospitalized so that's a plus.

Wish the news was better today but maybe tomorrow it will be.

Friday, April 22, 2011

Friday, April 22, 2011

Our sympathies and prayers are in England with the family of Estelle's brother, Alan, today. Alan passed away last night after a lingering illness and there are no adequate words to express our sorrow for their loss to his family and friends.

Estelle's sister, Marlene, has left it up to Estelle's immediate family as to the proper way and time to tell her of her brother's death and we are still undecided as to when that will be. She is still recovering from her own recent set-back and Dan and I are not sure she would even be able to process the information in her current condition.

I spent some time with her this morning and although she was awake when I arrived she did not respond to me at all. Normally we can get her to say "hello," and make short conversation but today she was having none of it. She did not make eye contact with me or the nurses who were in and out and she did not acknowledge any conversation attempt by any of us. She seemed a bit agitated. When she gets upset she generally moves her right hand alot but if you hold her hand, she stops. Today she simply pulled her hand away from mine and continued to pick at the bed clothes.

Eventually she fell asleep and I stayed for a bit to make sure she did not wake right back up and when she began snoring, I felt fairly safe in leaving her.

I wish there were more things to offer her, but I do not know what those things could be.

Again, our heart-held thoughts and prayers are with Alan's family.

Please hold them in your hearts, too.

Wednesday, April 20, 2011

Wednesday, April 20, 2011

Spent an hour or so with Estelle earlier today. She slept through the entire visit. I think she's just plain worn-out.

Virtually all outward signs of infection are gone. Her eye is cleared up, the rash on both arms and her left hand is just about totally gone. There is a lot of swelling in both of her hands currently but it appears to be more from IVs infiltrating than from any disease process. Both hands are badly bruised - the antibiotic she was on is notoriously hard on the vein and her skin and veins are fragile to begin with.

It sounds silly to say that she did not look "right," but that's about all I can honestly say. I am unable to put my finger on what seems different, I just feel that it's different.

The nurses say she's been fine. She is not complaining of pain or anything else. She's not any more or less talkative than usual with them and they turn her and check her frequently and they assure me that they have not noticed a change of any sort so maybe it is just me.

Most likely she is just exhausted from infection and from her days in the hospital and the testing and everything else which changed her routine.

Hopefully she will continue to rest easy and give her body and mind a chance to heal in it's own way at it's own pace. I did not try very hard to wake her today because she seemed to be sleeping so peacefully that I did not have the heart to disturb her.

Tuesday, April 19, 2011

Tuesday, April 19, 2011

Estelle was released from the hospital and returned to her room at Woodbine at approximately 3:45PM this afternoon.

A little the worse for the wear, I am sure, but all-in-all, doing much better.

Each trip to the ER or admission to the hospital surely takes it's toll on her but she seems to handle it well and recover fairly quickly. I wish there were a way to avoid the constant threat of infections but with MRSA in her system it is, most likely, going to be a chronic occurance. The best we can hope to do is to stay on top of it and be fairly aggresive in quickly treating it wherever and whenever it rears it's ugly head.

She is still on antibiotics for the cellulitis and the uninary tract infection and will finish out the recommended dosages in Woodbine. Her left eye also became slightly swollen and reddish over the weekend and they cultured that, as well, but because the two antibiotics she is receiving are both considered broad spectrum they are confident that if there is an infection present in her eye that it will also respond. The adjusted feeding tube is working fine and she is once again receiving nourishment on her regular schedule.

Thanks to everyone for their continued well wishes. Estelle is always pleased to hear that people are calling and writing and wishing her well.

Monday, April 18, 2011

Monday, April 18, 2011

Dan and I stopped in just briefly after work tonight to visit with Mom. We'd talked to the doctor and nurses several times during the day - she had gone to the X Ray Department late this afternoon to have her feeding tube adjusted under fluoroscopy since they'd been having some trouble figuring out why it was leaking so badly.


Fluoroscopy
is an imaging technique commonly used by physicians to obtain real-time moving images of the internal structures of a patient through the use of a fluoroscope. In its simplest form, a fluoroscope consists of an X-ray source and fluorescent screen between which a patient is placed. However, modern fluoroscopes couple the screen to an X-ray image intensifier and CCD video camera allowing the images to be recorded and played on a monitor.


It turned out that there was a slight bend in the internal tubing which was causing a portion of each feeding to back up in the tube and spill over. The radiologist adjusted the tube, straightened out the kink and it seems to be working fine now.

Mom was asleep for pretty much the duration of our visit - which, as I said, was brief due to our own continuing health issues. She is in isolation as is it - with gowns, masks and gloves being necessary for anyone who enters her room. I'm pretty sure that we both (Dan and I) have sinus infections which are not contagious but we still don't want to get too close to her or pass on any stray germs.

She is looking much better. Her color is good again, her skin is no longer dry, pale or sunken. The cellulitis is vastly improved with only the slightest bit of discoloring and swelling still visable. She does have some redness and swelling to her left eye which the nurse was getting ready to call the doctor about since it seems a bit worse than it did on Saturday but other than that, she looks about 80%better than before.

We did wish her a Happy Pesach from everyone who's called or asked us to pass on those wishes and she was grateful for the thoughts from everyone.

The plan is still to release her back to Woodbine sometime tomorrow with the antibiotics being continued via the feeding tube rather than IV. When a discharge time is planned I will meet the ambulance at the hospital and accompany her back to the nursing home and make sure she is settled back in properly.

May everyone have a good holiday - you are all in our thoughts.

Sunday, April 17, 2011

Sunday, April 17, 2011 Update

Dan and I are both ill and, after talking to the staff at the hospital and explaining the situation, have decided not to visit Mom in the hospital today. It seems unfair to expose her to even more germs and, honestly, we both feel pretty much too sick to do much of anything other than cough and sleep.

We've spoken to her nurses several times by phone and she continues to improve slowly. Her pain, according to staff, is fine and she has not required any additional morphine. The rash is improving, the cellulitis is responding to the antibiotics and the feeding tube site seems secure. She is receiving her regular feedings without incident.

The infectious disease specialist was in today and he has added a short burst (3 days) of Clindomycin in addition to the Vancomyacin in an attempt to get the MRSA under control.

If all continues to do well they expect to discharge her back to Woodbine in the next 24 to 48 hours where they will continue the IV antibiotics until both courses are completed as ordered by the doctors.

Thanks to everyone who's called or emailed with their concern and best wishes. IT is, as always, much appreciated by all of us.

Saturday 4/16, brief catch-up note

Dan here. I went by for about an hour yesterday, visited with Mom, and talked to her nurse. Mom did not talk a lot. She seems pretty wiped out from the whole hospital ordeal. From what I saw yesterday, the antibiotic seems to be working. Less redness, less swelling. The tube site also looked clean, so that's good, and the second x-ray confirmed that the tube is placed correctly. Friday in the ER she had some pain and some pretty agitated moments, but the nurse said she'd been comfortable since having been moved to a room. While she was in New Jersey, a urine culture had tested positive for MRSA. Now it has shown up in her blood culture. The antibiotic she's on for the cellulitis - vancomycin - is also one of the few that's effective against MRSA (the first two letters are for "Multiply Resistant.") So the same antibiotic is the treatment for both conditions, and we're hoping it's effective.

Happy Pesach to you all,

Dan

Saturday, April 16, 2011

Saturday, April 16, 2011 Catching Up

So sorry for being silent for so long. It's been a fairly rough week for all of us here in Northern Virginia.

I am also sorry to have to tell everyone that Estelle is in the hospital. She had developed a rash on her back and shoulders early in the week which they were treating with Lotrimin Cream. The nurses assured us, by phone, that is was not a bad rash. Being ill ourselves, we accepted that. I spoke to them on the phone on Thursday morning and was told that all was well and the rash was not any worse, although it was not any better, either. Late Thursday night, Eric, her night nurse phoned and told us that they were doing an x-ray of her hand because it was swollen, although they did not know why it was swollen. Friday morning, Jackie, a day nurse, called to tell me that they were setting up an appointment for Mom to see an dermatologist in two weeks for the rash.

At this point, I simply got dressed and went in to see her. When I arrived I found her to be uncomfortable, with a (to my eye, anyhow) bad case of what looked to be cellulitis to her right hand/arm and her upper left arm. Both areas were very red and hot to touch. I was also informed at that time that her feeding tube had come dislodged the night before and had been replaced but was still leaking. We'd just gotten that infection cleaned up a week ago and we surely do not want a repeat infection at the insertion site if we can help it. I asked for the doctor to be called immediately and, luckily, he happened to be in the building at the time. He came to see her within minutes and, after some discussion, we decided that she would be better treated in the hospital due to the apparent severity of the swelling and the rash along with her hightened discomfort level.

An ambulance was called and we both went to the ER for evaluation. The ER people were great. Quick and attentive and kind and efficient. Mom got a complete infectious work-up, was monitored cardio-wise, got an quick litre bolus of fluids, morphine for pain, an xray of her abdomen, (checking feeding tube placement)and a loading dose of potent antibiotics for what was diagnosed as a severe cellulitis.

We had arrived at the ER around 3PM and she was taken to a room around 10PM. She was resting comfortably when we left. We spoke to her nurse this morning and she is scheduled for an ultrasound guided abdominal xray - although the tube placement looked ok to the ER doctor last night the radiologist apparently saw something he/she didn't like and is doing further testing. Other than that, they are keeping her comfortable and continuing with the IV antibiotics and keeping a close watch to be sure the infection does not spread further.

Dan will be going to see her in a bit and he'll have more to add a little later. I just wanted to let everyone know what's going on.

Tuesday, April 12, 2011

Tuesday, April 12, 2011

Just a quick note to let you all know that, due to illness in our own house, we've not visited with Mom since Sunday. It seems the better part of valor to keep our germs to ourselves and not chance passing them on to Estelle.

Dan did talk to her nurse this morning. He had called us to let us know that Mom has a new rash on her back which they, for some unknown reason, are treating with an anti-fungal agent. Hopefully it will clear up quickly and one of us will be well enough to visit tomorrow morning to check on it.

How unfair it all is.....we made it all winter without a cold or flu and the first sunny 80 degree day and we've turned into sleepy,sneezy,sniveling sorry specimens of humanity.

Hope everyone else is doing well and enjoying the spring.

Sunday, April 10, 2011

Sunday 4/10

Hello friends and family, Dan again. Saturday we missed blogging. Mom talked to her friend Jenny in Freehold, and with Marlene in England, and was generally fairly talkative. The truth is details are hard to remember with a day's passage, so I'll just move on to today.

Today, again, was a pretty good visit. We started out chatting, and again, Mom showed that peculiarity in her use of language - she knows the lead-up words, and then there is a key word (usually a noun) she can't get out. After exchanging "how are yous" and the like, she said "Should we get a..." Of course I was interested, and when the sentence did not end, I repeated the beginning of it for her. "Should we get a ... what, Mom?" She answered "I wanted to get a... but this is all right." This happens, as I've said. I never did get that noun.

In any event, Mom was able to talk a little with Vivien on the phone this afternoon, and then shortly thereafter a new aid was in with a breathing treatment (she's on oxygen and breathing treatments again, since her 02 saturation gets low easily). We talked a bit more, even though she had the mask on and the machine that administers the bronchial dilator is noisy.

I also asked the nurse about the schedule for putting the hand splints on; these are soft cylinder-shaped things they wrap her hands around, to fight contractions. If a patient does not use her hands for a long time, they will ball up and it will eventually become next to impossible to flex them again. So the purpose of the splints is to keep her hands from being completely closed at all times.

When the aid pulled her fists open a finger at a time to put the splints on, it did hurt her some, but then she got them around the splints. I told her that the hurt always went away after her hands had been in them for a while... I think that's true, from seeing her when the splints have been on for a while. She thanked me for my concern, and knowing Mom, it could as easily have been sarcastic as sincere. But she thanked me again before I left so I'm pretty sure it was sincere.

Speaking of sincere thanks, please accept mine for all your wonderful attention to her and your calls. She appreciates them. I know it is hard and sometimes it takes time and patience to know where you are in a conversation with her. I'd like to take a moment to mention that she does listen when people call. Sometimes she is trying to reply but her voice can be very low - for those of you who talk to her with the speaker on, I try to repeat those interjections for her, when I understand them.

Back at the Manor in New Jersey, Mom sometimes looked at us (and I think others noticed the same thing) with a sort of glare. We haven't seen that here. I never knew for certain whether there was any content to the glare, and she never voiced any angry sentiments to go with it. But in any event that seems to be gone. I don't read much into this -- the glare might be back tomorrow, for all I know, and it might or might not truly mean something in the first place. But I can't imagine that it's a bad thing that we aren't seeing it anymore.

When we talk to her, her eyes are almost always open now, whereas she used to have them closed often, sometimes for days at a time, and often shut tight. So that, too, is an improvement. And as we've mentioned before, she's started talking to us much more since coming here.

So there are good things and there are bad things about her condition; it's a matter of degrees.

Tomorrow there's a meeting where any concerned family members meet with staff, so I'm getting out of work a couple hours early to make sure we make it. It will be interesting to hear what concerns are voiced by other family members, even though each patient's issues are very different.

We'll check in tomorrow evening. Until then everybody be well and enjoy the people who bring you joy and the things that most entertain and amuse you, whatever they may be!

D

Friday, April 8, 2011

Friday, April 8, 2011

**Sigh**

I wish I had more to say but Estelle slept through my entire 75 minute visit this morning. She had just come back from the shower and actually slept through having her fingernails cut while I was there. Her nurse said that he'd noticed she'd been sleeping a bit more than usual the past couple of days, too, so it bears watching.

Maybe we'll flip-flop our visit tomorrow and do errands in the morning and visit in the afternoon and we'll find her more awake.

Monday evening there is a "Family Council" meeting - we're not quite sure what it consists of, only that it is open to all family members and there will be a talk by the activities director as the main attraction, but Dan has asked for time off work so we can both attend.

I'm still running around trying to find maintenance people to actually hang the pictures on the walls. Not having much luck, either, for some reason.

It was kind of nice on Wednesday, however. We've got all the pictures that everyone's sent us framed in various picture frame collages. They're sitting on her dresser waiting to be hung. One of the nurse's aides was in the room after fixing Mom's mattress (the air was leaking out) and she said to me, "I talk to Mrs. Halberstein alot. I can tell by her pictures that she was an active friendly lady before she got sick. She looks so happy cooking in that one picture. It looks like she liked people alot so I talk to her even if she doesn't seem to be listening."

It made me realize that although we put together the pictures to help Mom remember they are also helping to make other people know her a little bit better, too.

Maybe Dan and I will just bring a hammer and a few nails ourselves tomorrow.

I mean, what are they going to do to us?

Shabbat Shalom to all!

Wednesday, April 6, 2011

Wednesday, April 6, 2011

It's a little embarassing to be so brief but there's not much I can say about today's visit.

I went a bit later today (being an old meanie, I had refused to drive Dan to the train station in the morning) and I got to Woodbine around 11AM instead of my customary post-drop off time of 9AM. I walked in and before I could even say hello, Mom opened her eyes, looked at me, said, "Oh Thank God you're here - now I can sleep," and sleep she did - instantly and completely - snoring and all.

I stayed until 12:15 thinking that she might wake up but she did not.

I did notice, on my way out, that the bulletin board in the lobby has pictures of Neil Diamond singing to the residents in the first floor day room. Apparently he was there as a favor to someone he knew for a birthday party sometime a few weeks ago.

He was a fake, but still......It would have been fun to hear Sweet Caroline or Song Sung Blue again.

We have to pay more attention to the activities which take place. Today there was a guitar player singing in Mom's "day room," and if I had known I could have come earlier and taken her down in the chair to listen. I could hear him from her room and he was, all in all, a pretty good singer - rousing old songs like "Billy Bailey," "Old Man River," and "On the Sunny Side of the Street."

Ah well, maybe next time.

Monday, April 4, 2011

Abulia

This is the article Mark found regarding stroke victims who will talk on a telephone easier than they do in person. It's just a short page from a much larger book but we found it interesting.

To enlarge the type simply double click on the image below - it should enlarge to a readable size.

Monday, April 4. 2011

It was an "Oh, dear," day today. Very little was right for Estelle and much of it was all wrong for some reason. She was quite agitated when I got there - immediately asking me if I was from "Room 107," and when I told her I was Laura, Dan's wife, she told me that if I was "who you say you are" I would "get us out of here immediately." Once again I told her that she needed to stay where she was because she needs more medical care than anyone can give her outside of a medical setting but today she was not going to be led down that path - she wanted to "go home" and that was all there was to it. She told me that all anyone does is tell her she must rest and that she was on the list for the army and maybe I could at least get her off of that one, if nothing else. Although she did not say so I definitely got the impression that I was certainly not on her list of helpful people today. In the greatest sort of exasperation she finally asked me if, the next time I saw her son, Dan, would I please tell him to get her out of there.

It is the worst sort of irony that Estelle's speech is much clearer when she is confused that it is when she is not.

Fortunately for me, at the height of her exasperation with me, her good friend, Meryl called. Mom loves to talk on the phone to people. We had noticed, even back in The Manor, that she often (but not always) becomes much more focused when the voice is coming from someone who is not physically in the room with her. Mark had found an interesting article relating to stroke victims and telephones, I will try to find it again and I will post it here. I remember it was quite informative and is, actually, quite common.

Anyhow, she spoke to Meryl for several minutes and, for the most part, was understandable and fairly on topic. She was delighted to hear that Meryl is planning a visit here to see her and talked about it with me even after the phone call was over. She did tell Meryl the same thing she was telling me - that she was not "doing so good," today and asked Meryl to contact Dan and ask him to call her.

Again, fortunately for me, Dan called shortly after Meryl did and Mom got to talk to him for a bit. Unfortunately for me, she did not once bring up the subject of leaving.

It was a helpless feeling sort of visit. I hate that she seems unhappy and yet, rationally I know that there is nothing anyone can do to change the things which have happened to her, and by extension, to her family and friends. Dan and I have discussed it endlessly - what's the best thing to do, the best thing to say, the best way to offer her hope but still give her reality at the same time. We basically tell her that she's ill, that she's suffered a bad stroke and she must have continual nursing care and that her family has placed her in the best possible place they could find and that everyone loves her and supports her but no one can simply "take her home" because she is, right now, far too sick to be anywhere else but where she is.

Where I in her situation, I am pretty sure I would not understand it or accept it, either.

And that's the rub.

Sunday, April 3, 2011

Sunday, April 3. 2011

Dan was far too eloquent this morning for me to compete with - and it's been a long day and we're both fairly exhausted.

Just a quick update on our visits today. We ended up going to see Mom twice today, once in the early part of the afternoon and once again around dinner time.

The first time we were there she was quite talkative. Unfortunately Dan understood her much better than I did. I do know she was alternating between sense and nonsense for much of our stay. Her eyes were open but she was focused on something we could not see. She was also talking to Joe often and much confused as to where she was and what was happening around here.

Near the end of our visit I became upset when I realized that although she was wearing her oxygen cannula it was not turned on and I hunted down the nurse who had just come on shift and seemed unsure as to why. We had her recheck Mom's oxygen saturation and it was quite low at 93 to 95% which could very well be a major factor in her confusion. The nurse promised to come back and give her a breathing treatment and restart her oxygen.

We had to leave at that point as we still had shopping and other errands to do but after dropping the groceries off at home we did return to Woodbine to make sure all was well. Mom was still awake and glad to see us again so we stayed briefly, assured her that one or both of us would return tomorrow morning and left her a bit sad but, hopefully, not as confused and feeling a bit better than she did earlier.

If she is not better tomorrow or if her saturation is still low we will speak to the nursing supervisor and/or call the doctor.

Saturday, 4/2 (A day late)

Dan posting. Laura and I spent a couple of hours with Mom yesterday, and had a lovely visit. She showed fewer signs of confusion, which I ascribe (perhaps simplisticly) to the evident clearing up of the last bacterial infection. The only thing that struck me as a non-sequiter was that at one point, she thought it very important to get across the thought that "I don't have any experience with this." I could not get her to pin down what "this" is -- I asked whether she meant this place, or this experience (of resting all the time,) but struck out in "20 Questions" on this one. She either gave up in frustration, or lost interest -- her affect is usually flat, and much harder to read than most people's.

If I ever succeeded in reliably reading all her expressions, I daresay I'd give up the writing game and become a professional poker player. But as with her speech, I like to think we learn more the more we try.

Sometimes, as everyone who knows her knows, Mom's quite witty, and that's oddly survived. Yesterday, another side of that came through. Please bear with my thoroughly unscientific recounting of this bit -- it's full of my own observer bias, and my love for that side of my Mom's personality.

Early in the visit, I was sort of "getting her started," which either "takes" or it doesn't. Most days it does nowadays. When I visit Mom, there's usually (though not always) a process of what I think of as "surfacing." At first she speaks most slowly, or perhaps does not even acknowledge my presence, though she is awake. Yesterday she greeted us with a very clear "hello, how are you?" when we announced our presence, but as is the norm, she was slow to engage beyond that. At those times, one fishes for something that engages her a bit.

I told her we'd just come from getting our taxes done, and I told her since Laura stopped working full-time last year, and I had not changed the way they withold my taxes at work, we had a big refund this year. She asked what I was going to do with it. I told her "pay debts." She said "I thought you'd say that." I told her we'd do some shopping too -- we need a new comforter and sheets so we can change them more often when the cat-hair gets on them -- etcetera. This resulted in a "that's good" or two. I asked her if she wanted anything. I offered flowers or plants or other art for her walls... she didn't answer any of these offers. I think it may depress her a bit. Materially, it seems, she's got what we all spend our lives trying to acquire, that is, everything she could ever want. Of course the trick to this is that what she could want is to be able to do the things in life for which one would want any of these material extras. She fell silent, at least; that much I can say objectively.

So, having lost her attention with such offers, I began the project of recapturing it. One thus-far reliable gambit is to talk about all her friends and family who send their love, and to relay any news we know of their lives. So I began that way, and then started to tell her something I think she'd like to know: that all the people we met who knew her in New Jersey, and all her friends, were prone to say that people she met loved her immediately, and that so many people sent their love because she really is loved by so many.

Please understand that I don't paint myself as any sort of icon of filial piety. As often as not, my relationship with my mother has been difficult. Nor do I paint my mother -- your sister, friend, cousin, or aunt -- as some sort of saint. But one must be forgiven such sentimental pronouncements when they are true, and when they are the sentiments most likely to evince a response. She did say "that's lovely," or somesuch, often as I told her this. I told her her children all love her so much, because she taught us that loving people was the most important thing. At this point I threw in a bit of humor by reflex, and said "I have it on good authority that you have a big heart."

Now here's the reason I've put you, gentle reader, through so much personal meandering: I can report that although she may have lost some confidence in her read of such things, she has lost none of her talent for double-entendre.

Her immediate response was, "That's good. You mean physically?" Now that was a surprise. I responded "physically and metaphorically." Then she surprised me again, and asked, "Is that okay?" And I could tell by how she asked that she was well aware that such a thing was of medical interest to her. She wasn't panicked, mind you, or if she was showed no signs of it. But she was certainly interested.

I told her that a while back, the doctor said her heart is a little large, but that it's not so dangerous to her, because it's only dangerous if you're very physically active -- and that was the best I could do with my phrasing on the spot.

I think we're learning each time we see her. The stroke's done terrible things to the quickness with which she used to respond and converse. One has to be patient (and we continually feel like we fail her in that way). I think often she's frustrated when she tries to get things across. But sometimes she's very clear.

It's wrong to say Mom's the same old Estelle, only having suffered a stroke, even beyond impairment in communication and loss of quickness. The confusion that attends so many states she is prone to (for example, the effect of UTIs) can't be reliably and conclusively separated from the spottiness of her memory, especially for recent events. One day she'll remember that we're married and visited her in Freehold, another day she thinks Laura is on the Woodbine staff, and still other days our marriage is wonderful "news."

But stroke is notorious for ravaging one faculty and leaving another incongruously intact. I think Mom's sense of humor was always a signal aspect of her personality, both as others observed her, and as her own strongest coping mechanism. I think yesterday I saw her "getting" that there was a double-entendre, and I think she got that effortlessly. I may be wrong; she may have only identified that there was an idiomatic as well as a literal meaning for the phrase "big heart." But I really do think she got that there was a pun there. The other things she's said now and then unmistakably display a continuing facility with humor.

What's fascinating about this is that she is effortlessly in touch with verbal humor, which is so dependent on complex relationships in syntax and vocabulary, and often the witty rejoinder, or response to a joke, is instantaneous, whereas "serious" formation of speech is more difficult. This reminds me very much of the famous singer, who stuttered when he spoke but not when he sang (Mel Tillis I think).

Notes on the medical front: she was using a lot of accessory muscles to breathe -- that is, breathing seemed difficult, something it took visible motion on her part to achieve. We called in the nurse, and he needed a few minutes to take her 02 reading. Her 02 sats were low (95), so they put her back on the oxygen as we were leaving. We'll see if she is still on it when we return this afternoon; they're using it as needed now, but it's disappointing that it was needed. Sorry to give this short shrift, but if I bloviate (or blogiate, I suppose) any longer, we'll never get back over there!

More later,
Dan

Happy Mothering Day to Our English Family

Dan will be back later to fill everyone in on the weekend. I just wanted to take a minute to say

Friday, April 1, 2011

Friday, April 1, 2011

Happy April Fools Day to everyone. No need to play personal pranks, the weather's joke enough, I think.

Spent the morning with Estelle today. As always, there were things to laugh about and things to cry over. Visiting is such a mixed bag most days. Small milestones and small setbacks vie with one another for attention and it is easy to get lost in worry sometimes.

Today was Friday - which is shower day and, in the past, Estelle is usually worn out by the ordeal. Today, however, it was not an ordeal but a joy. She was awake and alert when I got there. The aides had just finished getting her back in bed and set up for the day. She is not opening her eyes again - which bothers me somewhat because for a few weeks here she was wide-eyed and focusing much of the time - but she was quite awake and talking a blue streak. She said she loved shower day and felt "very good." She even told me about the "contraption" they use to get her in and out of bed and when I asked her if she found it frightening she replied, "Not very, no."

She wanted to know if I had a jacket and if she had a jacket because she was going to need it if she wanted to "get out of here," but then she immediately told me that she could not yet "get out of here," because she could not walk and she must learn how to do that before she could leave. She told me that there was "a lot of trouble here," and that she was sorry for it but it "was not her fault." We talked some about strokes and what happens afterwards and she seems to be understanding better what has happened to her.

There was a good deal of conversation which I simply could not understand. I always feel so bad when I cannot make out what she is saying, if it is frustrating for me I can only imagine what it is like for her. At one point, after saying, "I'm sorry, I did not understand - what did you say?" for the 27th time I said, "I just don't hear very well anymore. My ears are not as good as they used to be," which she replied to with, "You hear fine you are just not paying attention." I did not know whether to laugh or to cry - it's just such a mother-like thing to say.

In fitting with the day, she did give me a good scare, though. Like I've said, she was talking a mile a minute today and somewhere in the middle of it all she began coughing. The coughing led to minor choking and I, completely forgetting anything medical I might know, freaked out. Because she cannot sit foreward and because she cannot clear her own throat or swallow she is, much more than the rest of us, susceptable to aspirating. I lifted her head and I cleared her airway as best I could and then went running for her nurse. He came into the room immediately and checked her oxygen level and listened to her breath sounds. He said she was a bit congested but not badly and it was all upper airway and not chest which was a bit ragged sounding. He gave her a breathing treatment and it seemed to help. He is going to look in on her frequently today and leave word for the afternoon shift to do the same. She did not have a repeat episode while I was there so it may just be that all that talking loosened up some phlegm or irritated her throat. I am just reminded of how fragile she really is and how many things there are to worry about sometimes.

I spoke to the social worker again and got the reports from Physical and Occupational Therapy. PT does not feel that they can work with her as of the present time because she would not really talk to them and she was unable to follow even simple commands. They said it would be unsafe to attempt taking her to their department. Exasperated, I asked if they could at least do the passive bedside exercises that were being done at The Manor and the social worker said she would ask them to write an order for that to be done. Dan and I will keep check to make sure they have done so and are doing so. I also asked about the hand splits since no one had gotten back to me about them and the social worker said she did not know. I asked her to call and ask them and she said she would but then came back a few minutes later and told me that OT left an order on March 30th for her hand splints to be worn 4 hours on and 2 hours off during the day shift but left off at night. I am glad someone has addressed that but I am angry that no one seems to be doing what the order said. They seem to be leaving them on all the time from what we can tell and I doubt that's very comfortable or even very good for her mobility. What good is straightening out your fingers if you are then left unable to ever curl them as well? Anyhow, I told her to please make sure that the order was brought to the nurse's attention and we will keep an eye on that as well. (I have to watch myself, I get annoyed too easily, I think - they will end up hating me for being so picky/bossy/irritating.)

Estelle did manage to pull me out of my (probable unreasonable) funk, however, God love her!! I told her I had to be going soon and she asked me what my destination was. (Her words, not mine.) I told her I was going home to do laundry and she asked me where I lived. I told her I lived in Alexandria, Virginia, just blocks away from her and she said, "Oh, that's lovely. I have a son who lives there, too. Do you know him?" I said, "Yes, of course. I am Laura, Danny's wife," at which point she gave a huge grin and said, very loudly and very clearly, "Oh, that's delightful!! Congratulations!!" I thanked her and she said, "No, thank you. I am so happy. This will do wonders for your reputation, you know!"

When I left we were both smiling. Albeit for different reasons, I am sure, but what difference does it make? A smile is a smile is a smile.

May everyone else be smiling, too!! Have a good Shabbat and a happy weekend.